The Rare Disease Network

Stand F 

The Rare Disease Clinical Trial Network aims to increase patient access to rare disease clinical trials in Ireland while keeping the patient voice at the centre of all our work by:

• Providing a hub for national and international collaboration, bringing together clinicians, researchers, patient advocacy groups, people living with rare diseases, industry representatives and Clinical Research Organisations (CROs).
• Supporting academic researchers in clinical trial conduct.
• Increasing patient participation in planning, design & conduct of clinical trials.
• Partnering with industry.
• Training early career researchers in rare disease clinical trial design, methodology & conduct.
• Exploring methodologies to optimise recruitment, retention & relevance to patient priorities.

EM: [email protected]