As part of the Society for Endocrinology’s 2022 Research Strategy, the Clinical Committee identified an opportunity to expand our existing data registries.

We have now joined forces with PeopleWith, an app provider, to develop the next generation of real-world data registries to advance clinical understanding of endocrine-related conditions and optimise patient care.

Our new data registries will serve as comprehensive repositories of patient information. They will provide valuable insights into prevalence, historical data, clinical manifestations, better concordance and suggested treatment outcomes for patients with endocrine-related diseases. This will enhance our understanding of patient outcomes, facilitate improvements in clinical care, and enable personalised treatment for each patient.

HOW DATA REGISTRIES WILL SUPPORT YOUR CLINICAL PRACTICE

1. Access comprehensive national databases of endocrine conditions

Draw from a wealth of holistic patient data to make well-informed decisions about your patients’ health. Think of it as having a global network of patient insights to inform your clinical judgments.

2. Empower your patients to manage their health

Your patients can actively monitor their symptoms, track diagnoses and manage medications. This means you will have a more comprehensive overview of patient histories, resulting in more effective treatment plans.

3. Access enhanced reporting with patient-reported outcome measures (PROMs)

Patient-reported outcomes put the patient front and centre. Gaining insights into your patients’ experiences will aid your clinical assessments and help you tailor treatments.

4. Advance research in endocrine care

Our data registries will foster collaboration among healthcare professionals, researchers and patients. They will help to identify trends, support evidence-based practices and provide new insights into endocrine care.

HOW YOU CAN GET INVOLVED

You can empower your patients to start tracking their health by downloading the PeopleWith app. 

To find out more about data registries and how you can get involved, contact Jessica Davis, the Society’s Clinical Practice Manager, at [email protected].