Paediatric differentiated thyroid carcinoma is the most common endocrine cancer in childhood. Due to its low occurrence, current treatment guidelines are based on small retrospective studies and results in adult patients. In order to achieve a more personalised treatment and effectively reduce complication rates, there is a need for uniform international prospective data collection and clinical trials.

Clement et al. report the collection of clinical data by a European paediatric thyroid carcinoma registry for all patients ≤18 years of age with a confirmed diagnosis of differentiated thyroid carcinoma. Data are collected from individuals diagnosed, assessed or treated at participating sites. This registry will be a component of the wider European Registries for Rare Endocrine Conditions (EuRRECa) project which has close links to Endo-ERN, the European Reference Network for Rare Endocrine Conditions. In the future, this may provide the opportunity for research teams to integrate clinical research questions.

Read the full article in Endocrine Connections 12 e220306